About Us

Career Opportunities

Our passion runs deep. Helping people around the world isn’t just a tagline for us — we do it for real. Discover the possibilities.

Join Our Team

We are a team of dedicated advocates who work to build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activist for their disease. We are always interested in hearing from those that have a passion for our mission and skill and experience that may contribute to our achieving our mission.

Please submit resumes and cover letters to [email protected].



Research Data Analyst

The Research Data Analyst will work closely with RARE-X’s platform team and Principal Investigator to integrate data from a variety of systems and sources, both external and internal. The Data Analyst will implement quality control programs and monitor the quality of internal data stores and flows. This individual will also meet regularly with our platform partners to ensure that both the original data and user interface effectively meet the needs of RARE-X’s research users.