In 2024, Global Genes partnered with Brad Thompson, M.A., NCC, LPC-S to host a caregivers support program aimed at helping caregivers develop practical, easily accessible tools and resources to take care of themselves and their mental health. The program ran from April-September 2024. As a follow-up, we’ve asked participants to share 1) Their experience with mental health and well-being programs for caregivers prior to participating in the program 2) How the program impacted them 3) What advice they. would have for other caregivers 4) What they learned from participating in the program.
By: Carrie Borrello
Before joining the mental health and well-being program for caregivers, my experience with such resources was minimal and often disappointing. As a caregiver to my son, who has been on a diagnostic odyssey for seven years due to a demyelinating disease of the central nervous system, I frequently felt isolated and overwhelmed. The healthcare system primarily focused on my son’s medical needs, leaving little support for my emotional and mental well-being. The stress, fear, and uncertainty of my son’s condition were constant companions, with few resources available to address my own mental health needs.
This program has been a beacon of hope in my life. It has provided me with a vital support network of individuals who truly understand the unique challenges of caregiving. The mental health resources offered have significantly helped me manage my anxiety and stress. The program’s holistic approach, which includes mindfulness practices, stress management techniques, and peer support, has profoundly improved my emotional resilience. Knowing that I am not alone and that others share similar struggles has been incredibly comforting and empowering.
One of the most profound benefits of the program has been the sense of community it fosters. Connecting with other caregivers who understand my journey has been invaluable. The shared experiences and mutual support have provided a safe space to express my fears and anxieties. This sense of belonging has helped reduce feelings of isolation and loneliness, replacing them with understanding and solidarity.
The program has also emphasized the importance of self-care and self-compassion. Previously, I often neglected my own needs, prioritizing my son’s care above all else. However, the program has taught me that taking care of myself is not only essential for my well-being but also enables me to be a better caregiver. Practical strategies for managing stress have become integral parts of my routine, helping me maintain a sense of balance and calm amid ongoing challenges.
Moreover, the program has equipped me with valuable tools for advocacy and staying informed. It has reinforced the importance of being proactive in seeking information and support for my son’s condition. By staying informed and advocating for his needs, I feel more empowered and capable of navigating the complexities of his medical care. At the same time, recognizing and addressing my own emotional and mental health requirements has become a priority.
In conclusion, the mental health and well-being program for caregivers has been a lifeline during a difficult and uncertain journey. It has provided me with a supportive community, practical stress management tools, and a renewed focus on self-care. The program has shown me that caregiver well-being is integral to providing the best possible care for our loved ones. My advice to other caregivers is to prioritize your mental health and seek out similar support networks. Taking care of yourself is crucial; you cannot pour from an empty cup. The benefits of such programs are profound and far-reaching, offering strength, resilience, and hope in the face of caregiving challenges.
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