In 2019, Waves for Change initiated a surf therapy event in North Carolina for families faced with a diagnosis of a rare disease. We have partnered with Global Genes to promote the event and to support families in this journey. With years of experience supporting surf therapy events for various populations, we are excited to work with our New England partners and sponsors to create a day for our Rare Surfers. For 2024, we have our inaugural event planned in New England for September 22nd. Global Genes is supporting our event with their patient advocacy network and Scout will once again work with families on logistics to ensure everyone has what they need to participate. You do not need to have experience with surfing or the ocean to participate as our local partner, Gnome Surf, is experienced taking individuals of all abilities out in the water with adaptive equipment. We are excited to facilitate this beach day for families dealing with challenges from a loved one with a rare disease. Please register through the link below and we will provide additional information to get you prepared for this Rare Surf experience.
