Community Events
Find events that you can participate in, both in-person and virtual!
Community Events Overview
If you or your organization has an event you would like to share, please submit!
Community events are created and submitted by outside individuals and organizations not directly affiliated with Global Genes. Browse and find upcoming community events by date and location hosted around the world or submit your own.
Upcoming Community Events
NR2F1 Family & Scientific Conference 2026
April 8, 2026 – April 10, 2026
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DetailsCureDuchenne Futures National Conference
May 21, 2026 – May 24, 2026
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Details2nd Edition of the Public Health World Conference (PHWC 2026)
July 17, 2026 – July 19, 2026
DetailsInternational v-ATPase Awareness Day
July 23, 2026
Details2nd European Congress on Rare Diseases and Orphan Drugs
September 14, 2026 – September 15, 2026
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Details7th Annual SCCAPE Conference
September 17, 2026 – September 20, 2026
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DetailsUpcoming Global Genes Events
Showing Up 101
Thursday, August 15, 2024, 3pm ET
Hosted by Global Advocacy Alliance, this session will introduce frameworks for grieving and coping, and promote openness and connection for moving with loss. Led by Myra Sack, a bereaved mother and Compassionate Bereavement Care Provider.
Financial Assistance Webinar Series Part 1: What Resources and Services Are Available to You?
Wednesday, Sept 11, 2024, 3:00 PM
Financial Assistance Webinar Series Part 1 featuring speakers from Accessia Health, Patient Advocate Foundation and PAN Foundation. During this session you’ll learn about the financial assistance resources and services that are available to you.
Part 2 will have more in depth information on where to find these financial assistance resources and how to access them.
Week in RARE
September 25-28, 2024
Week in RARE combines the RARE Health Equity Forum and RARE Advocacy Summit, in addition to the RARE Champions of Hope awards ceremony and annual membership meetings.
RARE Advocacy Summit
September 27-28, 2024
RARE Advocacy Summit is an unparalleled opportunity for advocates to forge meaningful connections with others in the rare disease community for future collaboration.
RARE Health Equity Forum
September 28, 2024
Through plenary sessions, networking and interactive table talks, RARE Health Equity Forum empowers attendees with actionable tools and strategic insights to advocate for a more inclusive rare disease community.
Financial Assistance Webinar Series Part 2: Where to Go and How to Access Financial Assistance Resources and Services
Friday, October 9, 2024, 4:00 PM
The Financial Assistance Webinar Series Part 2 features speakers from Accessia Health, Patient Advocate Foundation and PAN Foundation.
During this session you’ll learn where to go and how to access the financial assistance resources and services discussed in Part 1.