Dystonia 16

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Synonyms: DYT16 | Early-onset dystonia parkinsonism

Dystonia 16 (DYT16) is a very rare and newly discovered movement disorder which is characterized by early-onset progressive limb dystonia laryngeal and oromandibular dystonia and parkinsonism.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version July 2024

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Dystonia 16?

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Advocacy Organizations

Project CASK

VISION Project CASK believes in a world free of the life limitations and debilitating effects of CASK gene disorders. ​MISSION To accelerate breakthroughs in research to develop treatments and a cure for CASK gene disorders. ​VALUES Collaboration. Transparency. Urgency.

The Assistance Fund

The Assistance Fund (TAF) is an independent charitable patient assistance organization that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses. We currently manage more than 90 disease programs, each of which covers all FDA-approved treatment for the disease named in the program. Since 2009, TAF has helped more than 190,000 people access critical treatment for life-threatening, chronic, and rare diseases.

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Clinical Trials

For a list of clinical trials in this disease area, please click here.