Rare disease community members who are committed to moving research forward as quickly as possible often find they must raise funds to make things happen and decide where the funds they raise should be directed. In this webinar, you’ll meet rare disease leaders who will share their successes and help you identify strategies that will work well for you.
Speakers:
Brittany Stineman
Founder and Volunteer President, smashSMARD
Sanath Kumar Ramesh
Founder & CEO, Open Treatments Foundation and CureGPX4
Terry Pirovolakis
Founder, CureSPG50 and Director of Contact Centre Strategy, CIBC
This is the third in a series of three videos in conjunction with the Rare Drug Development Symposium, presented by Global Genes, in conjunction with The Orphan Disease Center of the University of Pennsylvania.
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