About Us

Sponsorship Opportunities

Global Genes is a globally connected community committed to eliminating the challenges of rare disease.

Together with our partners, we help people find and build communities, gain access to information, services, care and resources, and provide hope and support for the more than 400 million people affected by rare disease around the globe.

RARE Corporate Alliance

The RARE Corporate Alliance is a partnership of rare disease industry stakeholders committed to forging and supporting collaboration between industry and patient communities.

Email us to become a member

RARE Drug Development Symposium

This signature event, hosted in partnership with the University of Pennsylvania Orphan Disease Center, provides a unique opportunity for stakeholders from patient communities, industry, and academia to work together on innovative approaches to moving through limiting factors and accelerating the development of new therapies for rare diseases.

Support RARE Drug Development Symposium

RARE Advocacy Summit

The RARE Advocacy Summit has grown to be one of the world’s largest gatherings of rare disease patients, caregivers, advocates, and stakeholders.

Support RARE Advocacy Summit

RARE Health Equity Forum

Presented in partnership with the Rare Disease Diversity Coalition (RDDC), the RARE Health Equity Forum brings together stakeholders from the rare disease community to identify the challenges that disproportionately affect underrepresented populations and define collaborative efforts to address those inequities.

Support the RARE Health Equity Forum

Health Equity in RARE Impact Grants

The Health Equity in RARE Impact Grant program provides an opportunity for patient advocacy leaders to improve outreach strategies and address challenges that affect underserved and underrepresented patient communities.

Learn More About the Program

RARE Mental Health Impact Grants

The RARE Mental Health Impact grant program provides an opportunity for patient advocacy leaders to improve the health and mental well-being of the rare disease community–including children, siblings, adults, caregivers/care partners and those who are grieving.

Learn More About the Program

RARE Meet-Ups Impact Grant

Global Genes is excited to continue to partner with advocacy organizations in their efforts to further their mission and work in the rare disease community. Through our RARE Impact Grant Program, Global Genes will provide financial support in addition to marketing, materials and resources for each Meet-Up.

Learn More About the Grant

RARE Compassion Program

The RARE Compassion Program pairs medical students with patients and families living with a rare condition through a series of rotations, to help inspire interest and careers in rare disease care and research, and build the next-generation of future medical professionals as key advocates for their patients through patient-centric listening and interactions.

Learn More about the Compassion Program

Stay Connected

Sign up for updates straight to your inbox.