RARE Impact Grant Opportunities

Global Genes provides grants to rare disease patient advocacy organizations to make specific, tangible differences for the communities they serve.

In 2024, grants will be awarded to Global Advocacy Alliance member organizations to further work and to develop programs to address health and wellbeing of the rare community and research readiness.

2024 Rare Disease Grant Opportunities

RARE Mental Health Impact Grant

An opportunity for patient advocacy leaders to improve the health and mental well-being of the rare disease community–including children, siblings, caregivers/care partners and those who are grieving.

Learn More About the Grant

RARE Research Readiness Fellowship

The RARE Research Readiness Fellowship will provide awardees with high-touch support and mentorship around research readiness and strategic planning.

Learn More About the Fellowship

2023 Impact Grants Were Awarded To:

Words From Previous Winners

“Thanks to the support of grant funding, we were able to focus our efforts on providing the necessary care to patients, on finding drugs and arranging their delivery, to provide psychological assistance, to interact with volunteer, state and local services to more effectively solve the problems that patients had after the start of the war in Ukraine. It is important to feel the support of friends from all over the world, it really helps a lot not to give up and keep fighting! We are very grateful to you!!! Thanks!!!”

-PHA Ukraine, Oksana

“These meetings help in so many ways! It is emotional and affirming to meet with other children and families with the same wonderful kids. The presentations are focussed and almost 100% relevant and useful – the information keeps coming thick and fast.
And the networking with other families builds bonds of support and also gives lots of useful day-to-day Tips.”

-Caregiver, Meet-ups Grant

“Thank you for your recent gift to the Global Foundation for Peroxisomal Disorders. Your generous contribution will help us support families from 39 countries around the world impacted by peroxisomal disorders, while also funding groundbreaking research initiatives to improve quality of life for patients impacted by this devastating childhood disease. Thank you for choosing to support GFP and opening your heart to our families.”

– Melissa Bryce, ED and Co-Founder of Global Foundation for Peroxisomal Disorders

A year after Global Genes provided grants to several organizations affected by the war in Ukraine, we were delighted to receive an update from one of these groups with how the grant has helped their community.

Thank you to our 2024 RARE Impact Grant Sponsors

Interested in supporting Impact Grants? Download the prospectus or contact us

Avidity Biosciences
beam therapeutics
travere logo

2024 Grant Timeline

February 8, 2023

2024 Grant Topics Announced

March 4, 2024

Grant Applications Open

April 3, 2024

Grant Applications Close

Week of April 29, 2024

Grant Awardees Notified