RARE Concierge – Patient Services

Free, personalized service for patients, caregivers, and healthcare providers

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Join Our Community – RARE Portal

Login or request an account to join the Global Genes community in the RARE portal

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Grant Opportunities

Grant opportunities for the rare disease community

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Share Your Story

Although individual diseases are vastly different, our stories and experiences bond us as a rare community. Share your story as a patient, advocate, caregiver or supporter to be featured in our community stories.