Lunch & Learn: Grant Writing 101

April 8, 2024

Lauren Isbell, CEO of Nevus Outreach, outlines basic grant writing skills and walk through a check-list to determine if your non-profit organization is grant ready.

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Lunch & Learn: Marketing Strategies And Best Practices

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Global Genes’ Mackenzie Abramson continues her Rare Disease Week adventures in Washington D.C.

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Global Genes’ Mackenzie Abramson takes on Washington D.C. at Rare Disease Week

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Power of Partnering: Rosamund Stone Zander Translational Research Neuroscience Center — 2023 RARE Advocacy Summit

As part of the Becoming a Research Ready Organization track from the 2023 RARE Advocacy Summit, this […]

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Lunch & Learn: Grant Writing 101

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Lunch & Learn: Marketing Strategies And Best Practices

Global Genes’ Mackenzie Abramson continues her Rare Disease Week adventures in Washington D.C.

Global Genes’ Mackenzie Abramson takes on Washington D.C. at Rare Disease Week

RAREly Told Stories Workshop

Fibrous Dysplasia Diagnosis Inspires Camryn

Meet Wiley, an Angelman syndrome warrior

Beginner’s Guide to Community Activation — RARE Advocacy Summit 2023

Spinal Muscular Atrophy Case Study — 2023 RARE Advocacy Summit

Power of Partnering: Rosamund Stone Zander Translational Research Neuroscience Center — 2023 RARE Advocacy Summit

Stay Connected